2021 Advocacy Priorities
- Continued engagement with the Ohio Department of Medicaid (ODM) on multiple initiatives affecting patients with a bleeding disorder. These include advocacy to the Pharmacy and Therapeutics Committee (P&T) on drug coverage under ODM’s unified preferred drug list (PDL), discussions regarding ODM’s move to a single Pharmacy Benefits Manager (PBM) for all Medicaid populations, and the reprocurement of Ohio’s five managed care contracts;
- Introduction and passage of pro-patient legislation related to PBM conduct, copay accumulator, non-medical switching of drugs on a formulary, and protections for patients with preexisting conditions;
- Advocacy to support current and/or increased funding in the State Operating Budget for patients with bleeding disorders. Key funding sources include the Bureau for Children with Medical Handicaps (BCMH), the Hemophilia Insurance Premium Payment Program (HIPP), and Medicaid funding;
- Educating lawmakers on policy considerations for individuals living with a bleeding disorders and developing additional legislative champions;
- Engagement on any other legislative or administrative issues that impact patient access, pharmaceutical drug coverage, Medicaid, or other issues important to patients living with hemophilia.