Please join us for the Ohio Rare Disease Summit!
The agenda is focused on educating business professionals, policy leaders, lawmakers, and patients who are making healthcare coverage decisions and policy changes to impact the care of rare disease patients.
Registration Information
Registration is free, but please register for room set up and meal counts.
The deadline to register is Friday, September 25th for lunch counts and up until the event without.
For any further questions or concerns, please reach out to chair@ohiobdc.org
Thursday, October 8th
Africa Event Center
Columbus Zoo
8:00am - 3:00 pm
Hosted By:
Ohio Bleeding Disorders Council
Ohio Rare
Next year's Statehouse Day will be March 10th, 2027.
Registration opens in January.
Ohioans working together to ensure and enhance the quality and accessibility of comprehensive care and services for children and adults with hemophilia and related bleeding disorders through information sharing, public education and advocacy.
Each year, the Ohio Bleeding Disorders Council hosts Statehouse Day, where people affected by a bleeding disorder get to meet their state elected officials and voice their concerns about issues important to the Ohio bleeding disorders community. Click here to request more information.
The OBDC is made up of the four chapters and eight Hemophilia Treatment Centers in Ohio. Visit the ABOUT US page for more information and contact information for each entity.